This is a video of Joshua Matthew Sams. He was born with a neural Tube Defect. He was not suppose to live past birth, but, he defeated the odds and lived 67 days and 7 hours. Just goes to show you God is really in control. You can read his story at Joshua .
http://www.youtube.com/watch?v=7wB8cYug0WI
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I went a read several posts at her blog. What a great family and testimony to the greatness of God.
I had been following his story (I think I found it through your links). I was sad to hear of his passing.