Working on my book…

I have been working on my book about Johnathan’s and our adventure in the NICU for some time now. I have to say it is up there as one of the hardest things that I have had to do. While I am writing it, it seems as if I am re-living it again. I feel the emotions the scaredness, the joy, the frustration. All of it. This has been very therapuetic for me. I really have enjoyed doing it. I am at a part in the book, though where we find out that JT needs a small bowel/liver transplant and it is very hard for me to write about how I really felt. I tried so hard to hide how I felt. Only me and God really knew. I portrayed that everything was fine. Everything was going to be fine. But, yet, I knew that it probably wasn’t going to be. You see Johnathan like to go directly opposite of everything everyone said he was supposed to do. Example. He was supposed to learn how to eat and be home by christmas early January at the latest. Then he started leaking bowel from a fistula (which is basically a hole) in his bowel. So, that never happened. I just kept thinking in the back of my head this is so totally not good. And personally, I felt really bad because another baby would have to pass away to give my son life. How do you pray for that? I went along with everything did all the testing put him through all the testing which is very vigorous and lots of blood needed to be taken. Which I might add that he had hardly any of. It was very hard on both of us. More so him than me. Yes, I had to watch him go through it all and it broke my heart but, he had to actually go through it. Not me. I sometimes would just sit and look at him and wonder what he was thinking. He probably thought that it was normal. That all babies had to deal with this. And he did deal with it very well, I might add. I used to get so mad because he would be so happy. How could he just smile all the time and just be content just to be where he was?

He hardly ever cried in pain. If he cried in pain you knew it was bad. But, that was so far and few between that, it was a shock when he did. He did cry because he wanted attention. Those were the cries that I loved to hear. Because he needed me. I could at least be there for him for that.

Even the whole night that and during the next day that he passed away he just layed there calm and content and let Gina work on him to stop the bleeding. He only cried once and that was about 2:00. And it was a weak wanted his binkie cry. It scared me so bad. And broke my heart all at the same time. I would never hear that cry again. But, then when he left us, to go to God, he left with a smile on his face.

Bobbie Predmore said the most beautiful prayer that day. She said and this is all that I can remember Dear God, Please send your angels to help Johnathan get to your arms. We know your angels are surrounding us. Please show your mercy so that they can show him the way home” I am going off of memory here. And well, with that time being such a blur it is a miracle that I remembered that much of it.
I just remember feeling peace come over me at that time. Peaceful that he would be going someplace beautiful and that he would be taken care of in the utmost way.

I still hurt really badly, but, I feel comfort in the fact that God had my back through out all of this just as He does during the small things. He answered our prayers in the most rewarding richest way. He gave us the time that we needed to say goodbye, to give kisses, to prepare the kids and make it possible for them to be with Johnathan. Family came to see him that had only been there once and actually took time out of their morning to get there in a very fast manner. Something I thought I would never see happen. But, God works and when he works let me tell you, he can move mountains and that is the truth.

Johnathan passed away in Harley’s arms, and I was mortified about that at first but, it was right too. You see she loved her little brother so much and he loved her. She was the only one that could get him to actually giggle out loud to where you could hear it. All she had to do was blow on his chin. She was never afraid of the tubes and wires. She never seen him as sick only as a baby and as her brother. And I truely think she would have argued with God to get Him to let JT stay with us. We tried to hide from that from her but, she knew.

We gave everything to God, we know he made the right decisios for us, even though at times we like to not think so. I have tried to argue with God. But, He always calmly tells me He has a plan. Sometimes I see a glimpse of that plan other times I am puzzled to it. But, unfolding before me was a miracle. A tiny glimpse of what God can do if you just let him work his magic in your life. Me just an ordinary person. Watched miracle upon miracle happen. Had all of my prayers answered. For that I am eternally thankful. Thankful that He gave me this chance. That he trusted and loved me enough to be able to be a mommy to 5 special gifts given to me. And many more that I adopt as mine. Because without any of them I wouldn’t be who I am today. A woman, a mother, a wife, a sister, a daughter, an aunt, a friend, who tries to find the best in people even when others think there is no hope.

Remember Jesus died for all of us. Anyone can have this gift and it is free. Just ask. He’ll be there waiting. There will be times that you stumble and fall but, God will be there just waiting to pick you up. He will hold your hand and He will carry you. Nothing is too big or too small for God. Sounds like cliches I know but, they are very true.

I have had some bad days and some really rotten day, but, I have also been able to smile, love, rejoice and find some happiness. All through the one who created us. He makes me whole on the hard days and gives me peace. He shows me unconditional love and I thank Him so much for that.

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2 Responses

  1. What a testimony that you have!
    Share it whenever the Lords prompts you with the opportunity. He will use your life and experiences to bring others to Him if you will allow Him to do so.

    (((((Bobbie)))))

  2. Hi… I wanted to share this with you… and this seemed a good spot to do so. My mom just dropped off a bookmark that was made- it has my uncle’s obit. on one side and this poem on the other… here’s the poem (you may have this already- if so- sorry)

    The Broken Chain

    We little knew that morning that God was going to call your name, In life we loved you dearly, In death we do the same. It broke our hearts to lose you, you did not go alone, for part of us went with you, the day God called you home. You left us peaceful memories, your love is still our guide, and though we cannot see you, you are always at our side. Our family chain is broken, and nothing seems the same, but as God calls us one by one, THE CHAIN will link again.

    I thought it was worth sharing… going to share with Sumi too.

    HUGS and lotsa love!

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